Rare disease leaves California infant nearly untouchable

(KCRA)  On October 12 Kirsti and Jason Kinkle welcomed their daughter, Kiira, into the world.

The next day they learned their daughter had a rare disease that makes skin-to-skin contact almost impossible.

“This is the worst disease you’ve never heard of,” says Kirsti Kinkle.

The Kinkles said their daughter was born with recessive dystrophic epidermolysis bullosa, a genetic skin disease which causes the skin to blister or even tear from rubbing, friction, scratching or even adhesive tape.

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